Overcoming FSHD together
At Facio Therapies, our main drive is to overcome FSHD by developing a therapy that stops the progression of the disease. But that is not where our ambition stops. We are also committed to a socially responsible business model based on principles enshrined in our articles of association.
We want to have a positive impact on lives rather than maximize financial gain. This principle means that our therapeutics will be affordable and widely available. It also means that at least 50% of our future profits will be used for expanding treatment options and quality-of-life improvements for people with FSHD.
We hold ourselves accountable to the FSHD community. This principle means that we are transparent on our goals and achievements. We provide regular updates on our progress, and will publish the results of every study we sponsor – even if those results are less than positive. This principle also means that in due course we will explain our drug pricing and access policies. As part of this transparency we publish audited annual reports which can be accessed below.
We work closely with the FSHD community, including not only advocacy groups, but also leading scientists, clinicians, and drug developers. In keeping with this principle, we are a network company that keeps its fixed cost at a functional minimum. We also want our partners and investors to share our values.
For and by people with FSHD
Our business approach is different because Facio Therapies is for and by people with FSHD. Everything we do is focused on stopping the progression of FSHD. Our founders – Kees van der Graaf (Netherlands), Bill Moss (Australia) and Neil Camarta (Canada) – are business leaders from the FSHD community. We are funded by FSHD-affected families and friends from Australia, Europe, and North America; the FSHD Global Research Foundation (Australia), the (Dutch) FSHD Stichting, the FSHD Canada Foundation, Amis FSH (France); and our drug discovery partner, Evotec (Germany). Combining our brainy passion with the support of people with FSHD, their families and their friends, we believe we can break through to an FSHD therapy.