Kees van der Graaf
Kees van der Graaf is a founding investor in FSHD Unlimited and chairs its Board. In 1997, Kees and his wife, Renée, established the Dutch FSHD Foundation with the aim of raising funds for research. For over 30 years, Kees worked for Unilever, where his last position was member of the Board of Directors responsible for all European business activities. Thereafter, he was Executive-in-Residence at the IMD Business School in Lausanne, Switzerland. He currently holds supervisory positions at various multinational companies. Kees was one of the initiators of the Dutch Muscles for Muscles (Spieren voor Spieren) fund-raising project, and was president of that foundation for 7 years. Kees and Renée have three sons, the eldest of whom has FSHD.
Bill Moss AO
Bill Moss AO is a founding investor in FSHD Unlimited and serves on its Board. Bill spent 23 years as a senior executive and Executive Director with Macquarie Group, the pre-eminent Australian investment bank. In 2007, he left Macquarie to pursue philanthropic initiatives, which included establishing the FSHD Global Research Foundation, Australia’s first not-for-profit organization focused on finding a treatment or cure for FSHD, of which Bill suffers. On January 26, 2015, Bill was awarded one of Australia’s highest honors, Officer of the Order of Australia (AO), for his contribution and distinguished service to the community at large and in championing the disability sector. Bill is also highly sought after for his commentaries on the general economy, social justice, and the ongoing need for Australia to do more to advance the interests of the country’s disabled and disadvantaged.
Neil Camarta is a co-founder of FSHD Unlimited and a member of its Board. He is currently President & CEO of Western Hydrogen Ltd, and prior to that held the position of Executive Vice-President, Natural Gas for Suncor Energy Inc. Neil is the founder and CEO of the FSHD Canada Foundation. He also sits on the board of the Science Alberta Foundation and on the ENMAX Board of Directors, and previously served on the board of the Alberta Shock Trauma Air Rescue Society (STARS). He joined Shell Canada Ltd in 1975 and held senior positions in Canada and abroad. Neil retired from Shell in 2005 and worked as Senior Vice President of Petro-Canada’s Oil Sands business.
Dr. Cord Dohrmann is a Board Member of FSHD Unlimited. Cord is the Chief Scientific Officer and a member of the Management Board of Evotec, Facio’s strategic drug discovery partner. He also serves on the Supervisory Board of Eternygen GmbH. Cord has spent over 20 years in biomedical research at leading academic institutions and in the biotech industry. Before joining Evotec in 2010, he held various management positions including CEO at DeveloGen, where he led the company from a start-up to an internationally recognized metabolic disease company. Cord received his Ph.D. in Cell and Developmental Biology from Harvard Medical School in Boston, USA and has been consulting the European Commission, the Max-Planck-Institute as well as venture capital firms.
David Mackay is a Board Member of FSHD Unlimited. David held a number of key positions at Kellogg Company in the United States, Australia, the United Kingdom, and Ireland, retiring as president and chief executive officer. He was also a member of Kellogg Company’s Board of Directors and Executive Management Committee. He holds a Bachelor’s degree in business from Charles Sturt University, Australia. Currently, David serves as Director at Clorox and Fortune Brands. David’s wife, Michelle, has FSHD.
Chip Wilson is a Board Member of FSHD Unlimited. Chip is an entrepreneur, visionary, business leader, and philanthropist. He founded the yoga-inspired clothing company, lululemon athletica, and is credited with starting the “athleisure” retail category, which has expanded into a $100-billion-a-year global business. More recently, he created a portfolio of companies called Hold It All, which directly reflects his diverse interests, personal vision and values. His philanthropic initiatives include imagine1day, a non-profit organization committed to bringing quality education to all Ethiopians by 2030, public arts and parks initiatives throughout Metro Vancouver, and The Chip and Shannon Wilson School of Design at Kwantlen Polytechnic University. Chip has FSHD.