The FSHD Global Research Foundation is an Australian not-for-profit organization dedicated to finding treatments and a cure for the debilitating disease Facioscapulohumeral Muscular Dystrophy (FSHD). Established in 2007, by businessman, philanthropist and FSHD sufferer, Bill Moss AO, this pure charity allocates 100% of all tax deductible donations to fund world-class medical research and medical education – having established 34 ongoing medical research grants across nine countries. More information is available on fshdglobal.org.
The Dutch FSHD Foundation stimulates, facilitates, and financially supports solid scientific research into the causes of FSHD, in order to find treatments and develop solutions that help improve patients’ quality of life. More information is available on www.fshd.nl.
The singular goal of the FSHD Canada Foundation is to help find a cure – as soon as possible – for Canadians who suffer from FSHD. To accomplish this, the Foundation aims to reach out to all Canadians to make them aware of what is going on in FSHD research and to solicit financial support for the critical research required to find a cure. The Foundation will then use these funds to support FSHD research – in Canada and around the world. More information is available on www.fshd.ca.
Amis FSH (Friends of FSH) is the French, government-recognized, not-for-profit organization dedicated to finding a cure for FSHD. Amis FSH seeks to raise public awareness of FSHD, actively supports FSHD research, and brings together patients, scientists and clinicians. More information is available on www.amisfsh.fr.
FSHD-Spain is a young and committed association of people who fight for a common goal: Finding an effective treatment for FSHD. FSHD-Spain connects and represents the Spanish people who have been affected by FSHD and their relatives and friends. FSHD-Spain raises funds to sponsor research towards therapeutics and diagnostics for FSHD, and to build a Spanish FSHD patient registry. To learn more, please visit: www.fshd-spain.org.
FSHD Italy’s goal is to stop FSHD and to guarantee a sustainable future for those affected. To reach this goal, the association finances scientific research towards treatments for FSHD, and supports the Italian people affected by FSHD. The association has set up activities to raise funds, to increase public awareness, and to promote social and health care and the protection of patient rights. More information is available on fshditalia.org.